Quinn Update

Silly Selfie

Last week we had Quinn's Re-evaluation for EI at our home.  All of Quinn's  therapist came to talk about her progress and their recommendations for the upcoming year.  I was lucky enough to take the day of off work to be apart of this meeting.  As many of you know Quinn has been diagnosed with Verbal Apraxia.  She is starting to make some speech progress and picking up new words she says consistently.  She has mastered "hi" and attempts to say "bye" but usually waves to signify the difference when talking to someone.  She can now say "up" when she wants to be picked up or to climb onto the couch or chair.  There are a few sporadic words such as; "in" "out" and "open." 

All the therapist had some positive things to say about Quinn and the fun they have working with her.  Quinn has some significant delays in certain areas but a majority of those delays have to do with speech.  Quinn will of course continue all of her at home therapies; Speech, OT, DT, and Nutritionist for the next year.  We have increased Quinn's speech therapy to 3x a week and will also be bringing on a Feeding Therapist 2x a month to work with some of her sensory feeding issues.   We also learned that Quinn will continue on with Elecare aka "Liquid Gold" for another year.  She is making nice gains in her weight and growth but since her main source of nutrients, fat, and calories comes from the formula she needs to stay on it.  I am currently working with our insurance to help cover the costs of the VERY expensive formula. 

This past Monday we met with a pediatric neurologist to discuss the possibilities of Absence Seizures.  Most of the appointment was discussing what we have seen, her motor Apraxia diagnosis, and her health history.  Since Absence Seizures can take place in a child and not always be witnessed by someone it is important to have her looked at so that this does not get worse.  Quinn is scheduled for a non-invasive EEG in a few weeks.  The doctor also wanted to have Quinn's hearing tested to make sure that we are all set on that end.  He did a brief physical exam and Quinn checked out great.  No physical signs of any neurological issues based on reflexes, and motor movement.  The pediatric neurologist will review the results of the EEG and then decide if she would need any sort of medication to help with the Absence Seizures.  If the test is inconclusive she will be scheduled for a longer test to monitor her brain waves.  Hopefully this all goes well the first time around and we won't need to do any further testing!